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Sailor Moon status related and Health chattering
🕑 Added 2017-12-01 18:12:32 +0000 UTC Hello my dear Patrons. ( very chatty post down below, so I apologize in advance for any spelling and grammar mistakes)Why a Sailor Moon related post ? Well , cosplay obviously and also because the past week end, I challenged myself to go to Paris for the first time since I'm very ill ( aside from the times I passed by Paris to go see my doctors and try new treatments in Georgia and Germany)
This time I told myself :" I have to go !" There was a Sailor Moon concert and the birthday of one of my best friends occurring on the same day.
So I booked the train and show not knowing if I would be able to go ( because trough the week that preceded the day of the show ,I was in terrible pain). I went anyway.
That day was really tough for me . Even staying the whole show asked me a lot of courage. The thing I noticed in Paris : Nothing is optimized for disabled people ! I had to climb many stairs and it was a real challenge. ( no elevators, not even working escalators , It's a shame in a so popular city. I climbed them anyway going to my own pace and people were looking at me like : "what is wrong with her ??", because I look fine from the outside)
Hearing Sailor Moon's music played by an orchestra was a real delight to me despite everything. It reminded me when I was 12 and pretended to transform myself into sailor moon with a handmade fimo stick ^^ :)
And I think seeing friends when you have an illness is one of the best medication ever ! Yes it consumes energy but at the same time , it gives you so much happiness and a real boost to keep fighting !
I love my friends so much !! I wish I could see them more often ( comme certaines personnes ici qui se reconnaitront )
Many chronic ill people lose all their friends and I never really got it and I still don't because all my friends are still here ( I'm a really lucky person) , I still enjoy 100% seeing them, they seem to enjoy seeing me also, even though they need to wait for me when we walk or have to carry all my things and bear my silly sense of humor.
Now I'm back in my small town, and my body hurts like hell! Gosh will this have an end someday? I'm still following the antibiotic protocols ( but at very low doses), the french doctor doesn't really know what to do more for now to make things better, and I didn't talk with the German one lately. The french specialist advised me to keep following the protocol for a few months more before moving to something else. So my new everyday life is still hellish pain and dizziness ( but fatigue has improved a lot !), on some days it's almost unbearable and on some others well... I can shoot cosplay pics in my living room XD
I keep telling myself I want to do a live video and chat with you but I'm afraid I'll be too dizzy to do it. ( especially in english since it asks more concentration) I'm so lucky to have you all supporting me, cheering me up, still being with me one year and a half after all this fight started. And I would like to express a live thank you. I just don't know when I'll be strong enough to do it.
When I'm happy and speak to people, my brain keeps sending wrong messages to each part of my body and it makes me feel so dizzy! It's so frustrating .
This afternoon, I chatted with a daughter and her mom who follow my page and happened to be in the same shop I was in. ( yeah it's hell of a coincidence in deepest France ) They were really kind and we started discussing art, cosplay, movies, and then....ewhhhh @@ ..I felt like I was going to pass out. I hate this !
and , oh ! It's almost christmas ! I still don't know if i'll be able to do anything. I hope you will have a really good time :)
Anyway, I think, too much blathering, time to rest.
See you soon,
have a nice day , take care
Love
Clef
Comments
Oui ça doit être ça 😂 ! En espérant que tu lises ça, mon petit doigt me dit que si tu retournes a Coccinelle 🐞 je crois bien que tu auras quelques « bricoles sympathiques » a glisser au pied de ton sapin pour Noël 👍🏼 Tâche de pas t’envoler par contre 😅 Vu le temps pourri..
You are beautiful inside and out, you are special, you are loved.
noooooon en fait on est tous les deux bilingues tellement on est forts .Xd
ça doit sûrement être car j'écris en anglais en pensant en français XDDD du coup ça se trouve c'est plus dur à comprendre pour un anglophone XD. oups comment j'ai tué ta joie . je sors * XD
C’est cool de lire des news comme ça, même si il faut encore que tu continues a te battre jours après jours. J’espère que tu auras droit a une trêve de noël pour profiter un peu des fêtes tout de même ! Tu le mérites tellement !! Autre truc cool, je suis pourtant pas une lumière en Anglais, mais j’arrive a bien te comprendre ! Du coup bah je suis fier de moi 😂 Alors merci ! 😁👍🏼
