clefchan
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Update on health
🕑 Added 2018-02-22 17:53:06 +0000 UTC Hello my dear patrons.January (and february so far) have been tough. Lots of pain and fever.
Last time I updated, I told you about the pain increasing each month in my right flank. ( edit: at first I had written: "left..." I always think left means " right" I don't know why ><) I went to see my french Lyme specialist and then a Gastroenterologist. The first one told me to stop the antibiotics ( but not the rest) as long as we don't find what's causing that pain, the German specialist told me to continue the SIBO treatment ( which is now a natural treatment) And The GI sent me for an IMR which came back with no result. My gallbladder and pancreas look fine. ( But I already suspected it) I have further appointments for a gastroscopy and a scintigraphy during march and April ( yeah , that what they call" urgent" )
Somedays the pain is so strong I have to take morphine because nothing else work and I'm forced to stay in bed most of the time. besides, Lyme disease is still inflicting pain all over the rest of my body.
I believe they won't find anything and that the pain is just the result of lyme disease impacting my organ's functionality. (well mainstream doctors won't say it since they don't believe in Chronic Lyme disease , they'll say I'm fine and that I need to go to a therapist, but my specialists know better)
We'll see.
Anyway, they gave me pineapple juice for the IMR XD. Next time do you think if i'm being well -behaved they'll give me chocolate treats ?
Luckily, lately I have been able to eat a bit more diverse and I'm not being in pain as soon as I eat some fruit or vegetables. So the pineapple juice was ok ( despite too much sugar bleah >u<)
I have not been able to work on cosplay or drawings lately. I'm afraid I'm also losing the interest for it... I finish a costume and then what ? I'm not even able to wear it. Drawing ask me to be sitting down , which I can't do for more than 10-15 minutes at the moment . I don't like it but I'm losing the desire to do anything . I really need this pain to go away, it's starting to affect my creativity and my will .
Then, since I'm spending most of the time in my room, I decided to set my computer screen to the wall, I found a second hand Playstation 4 and am now playing Monster Hunter World everyday ;; I don't need to be sitting down, so it's perfect.
And guess what? Pitchoune likes Monster Hunter, she's like addicted to it !
Yeah that's her face when I'm playing XD
(no smile because pain was bloody strong that day)
I have also been taking bacteriophages again along with probiotics for my tummy. They come from Georgia ( the country), and are still not totally legal in France despite a lot of news papers saying it's the future of medicine ( which is not really true because they were discovered around 1940 and have been used since then in eastern countries)
If we're not taking account of the pain in my liver area, my tummy has improved. Like I told you before I'm now able to eat some fruits and a bigger variety of vegetables which is good news!
I'm also trying LDN on my left leg to see what happens ( Lot's of Lyme and autoimmune diseases patients take LDN , it helps reducing the pain and regulating the immune system in some cases) But since it's transdermal, I don't see any difference so far.
The vegetables in my fridge look weird :
A pic I posted on my private facebook account :
I've not been doing any sport for 1 year and a half now, I'm lying down 3/4 of the day , I'm not even able to carry a pack of water bottles... so... How can I have muscles in my arms ? I know it's not impressive at all and you'll probably laugh at them but.. my arms never looked that defined before, even when I was going to the gym XD
My etiopath says my body is reacting like no others she's known so far. Must be the reason. I'm an alien !
Joke aside, I believe my body is still healthy despite everything. Yes I have this bloody disease attacking it but I like to believe that my former life will have an impact on the issue of this fight. The fact I never drank, never smoked, that I used to do sports, never partyied hard and ate relatively healthy ( my only excess was sugar: eating chocolate all the time). I hope this will give me the tools to win over the disease on the long term.
And because Pitchoune is the star model of this account as long as I'm unable to cosplay, have one more pic :)
Remember : Enjoy life ! Don't let meaningless and sterile fights bother you, try to find the positive side in every trials life brings you. I like to believe there is is a reason behind everything that happens to us.,
Sometimes, insignificant things are beautiful and life is full of them ( a sunny day, a friend calling or emailing you, a cute cat or dog cuddling with you, having a pizza in your plate ( some of us can't even eat pizza ;) ) a neighbor smiling to you , being able to use your 20 fingers ( yes toes included ), having your family around you etc etc. Life is full of beautiful things we forget to appreciate :)
Je vous souhaite une belle journée ( ou nuit)
Clef
xxx
Comments
Hello Chris. Thank you for your comment and cheering . I don't think I'm having a Candida doe off however. Why ? Because that particular pain started in May 2017 and only grew stronger since then. Besides I didn't eat any sugar at that time but now I do. Not much but definitely not zero. It all started when I changed my diet to less sugar and more fat. Now I can't eat much fat and only eat small quantities of food at a time otherwise pain and fever explode and a crisis can last for about 3 weeks before calming down. It's what happened to me on new years eve. I had a tiramisu cake and cheese. I ate a lot more than I usually do and... well I'm still trying to recover from it. The pain is also located in my back witch is typical in Pancreas / gallbladder /intestinal inflammation. It is very located near the head of the pancreas or duodenum. that is why the GI is thinking about an oddi's sphincter malfunction . But even if it is an oddi's dysfunction, they have no idea what's causing it. They don't know either what is causing inflammation. And I didn't tell the GI about lyme disease ( I listened to my lyme specialist advices).. otherwise the GI would have shown me the way to the psychiatrist straight away. I do daily liver draining with herbal supplement , like desmodium ampoules, artichoke , milk thistle etc herbal teas... When I stop them, my skin is full of pimples but as soon as I take them daily my skin improves . I guess it means my hepatic functions are very lazy... but what's causing it ? What you said is true. I need to let go. I need to put aside the things I can't do. I have to accept the fact that like you said, it's not for today anymore. And not feeling bad about it. I guess even when you think you learned enough , you're still learning. Trials are made for learning I believe. It's a second chance. It's not easy to take. It asks time and resolution . Some times the pain makes you want to give up. But That is also why when people take time to reply to my posts like you did , I really feel like I must keep believing it all will be better. thank you !
I would be willing to bet that through this terrible process you have found yourself to be far stronger than you ever thought possible. That you can still see beauty through such pain (and joke) speaks to that strength and of wisdom earned in the only way it can be: the hard way. Yet, I would offer some unsolicited advice nonetheless: Don't borrow problems from the future. You will have enough time with them when they arrive and they will likely overstay their welcome anyway. By this, I simply mean that you need not worry about your waning interest in creative pursuits. That is not a decision for today. Allow yourself to put these things aside for a time until you are ready to come back to them. They will still be there for you when you’re ready if they are what you are meant to do. If not, then why worry? Mind only that which needs to be minded. From a symptomatic perspective, what you describe sounds like (from my layman’s perspective at least) one hell of a Candida die off reaction right down to the seemingly source-less pain in the abdomen around your liver. One might dare hope that this could be a good thing, that your body is starting to win the war and kill off the Candida. It’s always darkest before the dawn. Hang on tight and keep fighting. Drink lots of water to hurry the toxins on their way out and support that liver in any way you can… Belief is a powerful thing. It can change the very structure of your brain and perhaps, as some physicists believe, change reality itself. Continue to believe your body will win this fight. Hope is ever the best medicine!
Je comprends.. :( c’et tellement dommage vu ton talent, mais la frustration de ne pas pouvoir les porter c’est encore pire :( j’espère que tout reviendra bientôt ! <3
NOn, je n'ai plus vraiment d'intérêt pour le cosplay dernièrement. ça me paraît tellement loin.
Faut pas te décourager et continuer de te battre comme dans Monster Hunter, c’est un gros monstre qui se cache bien et qui fait bien chier! Au fait es tu sur Vero le nouveau réseau social de cosplay?
