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Another post ?
🕑 Added 2018-04-10 20:48:28 +0000 UTC Hello my dear Patrons !!Sorry, the pic has nothing to do with the content of the post, I just needed an image ^^,,,
It seems internet is back tonight so I'm jumping at the chance.
I wanted to make another health update because I've got some good news !
Starting with the not so good ones ; I got the results for my tolerance food test and it says I'm now intolerant to zucchinnis, which has been my main vegetable for one year and a half because all the others would make me too sick. Well, I guess it's time to find a substitute. Luckily, I can now eat some other vegetables without my tummy being too upset.
I'm also intolerant to cacao ( nooooooooooooooooooo, because I love to have my daily 88% dark chocolate bits) , a lot of fruits even bananas ( the only one I could still eat!!! :<) , vanilla ( like big time ! this one is poison for my immune system :<) and no intolerance whatsoever with meat,fish and dairy . Is this meaning that I should be a carnivore ??
The recap of the blood test though was : your immune system is on the blink, your microbiota must not be optimal. Yeah you don't say XD.
Anyway, I still have weekly fevers which are not cool, tachycardia, nauséa, panic attacks , muscles and articulations pain , dizziness, but...
The pain in my right side is improving. It still hurts but not to the point I can't stand up. I guess the etiopath was the right solution !! Still going and won't stop anytime soon.
I also did my first neurofeedback session but it's too soon to say whether it will help or not.
What are my treatments to that day ?
First, I'm still taking these :
These boxes are bacteriophages, some sorts of virus that eat bacteria ( each bacteria has natural phage). I actually import them from Georgia ( the country I went past year). It's a very expensive treatment ( 500 euros for 4 weeks) but it is helping my tummy and also fighting the recurring infections I had in my throat and nose ( I had proliferation of staphylococcus aureus which caused a lot of troubles)
One of you, one of my dear Patrons here, will soon fly to Georgia to try this treatment for their condition after we talked about it. I hope it will be helpful and even giving them hope back :)
I wish you the best !
If I hadn't shared on my disease, this person maybe wouldn't have thought/dared trying Phagotherapy so I'm happy my story can actually help !
After I did 4 courses of antibiotics for my tummy, I started this product :
Vivomixx is for me a miracle ! Well, not a miracle but still..... I can eat vegetables now !!!
Before these 4 months antibiotics and vivomixx, a single bite of leek, cabbage, carrot, mushroom ...etc would make me so sick it was hell on earth. I had 24/24 bloating and painful spasmes. Even my regular chicken and zucchinis made me suffer and I couldn't handle any probiotic !
After the 4 months antibiotics I started Vivomixx, I had done lots of researches on the best probiotic ever and it looks like it loves to its reputation. The first 2 weeks were not pleasant but then I noticed I could eat better without being bloated and in pain all the time. ( there's also the American version which is called VSL3)
it costs 100 euros a month( 2 doses per day) but it is worth the price. I can't do without it now.
Also, for more than a month I have been testing this :
it's actually the cheapest of my treatments and maybe one of the more powerful. (30 euros/month)
This is called Low Dose Naltrexone. I have the gel version which is often given to children because it's known to be harsh on the digestive system, and mine is already struggling)
In France, they don't really use this medication. I don't even understand why. First it has been given to alcoholics to help them stand the pain of withdrawal. it's been known to lower pain and regulate the immune system so it's given to autistic children ( because autism is a immune system issue, even more microbiome issue I should say) then it's been given to MS patients ( sclérose en plaques pour les français) but in France ? naah ... I guess it's too cheap. Big pharma can't make much profit on it.
As for me, I should be taking 1ml/3mg/day but....I can't. I'm slowly increasing the dosage ( I'm at 0,4 ml) otherwise the side effects are too strong (enhanced pain, strong insomnia, panic attacks...)
But guess what? I've got less pain in my body since I started this, I've got more energy ( I still have moments of exhaustion but nothing like before), I feel like I'm slowly starting to come back to life !)
I also did an immunophenotyping test lately to know how is my immune system doing and it looks like it's been reacting ! Even the parts were really low one year ago went a bit up. I don't really know if they all should be overreacting and i'm gonna ask my doctor in june when I see him. But you know what? My body is fighting, and it's fighting strong !
Along with the medications above I'm still monthly taking some antibiotics : hydroxychloroquine , nystatin, albendazole, Secnidazole and varied complements including digestive enzymes, betaine, various plants, NAC, enzymes, kapillar ( which has made the numbness in my limbs disappear) 2LXFS which is micro immunotherapy treatment against a virus etc etc..
I'm also doing rife sessions ( not very often because it can provoke tremendous die off reactions), stretching, walking and meditation.
Yeah, it's a lot ! But I'm getting better, bit by bit !
Lyme disease is one of these diseases people think they can't heal from. It's true, I probably won't ever heal fully, but I'm sure it will get a lot better. (it's even more true if you don't have any money. If you have no money, you are doomed do die because almost none of these treatments are covered, neither are the doctors appointments. (150 to 370 euros each visit...)
All the financial help I get from all the people who support me , all the cheering, all the pain and tears aren't for nothing ! I'll will get better ! I'll be back in cosplay and.... in life in general !
It's just a matter of time and persistence !
I'm putting this post in public because maybe the informations here could help some people?
-Love-
Clef
Comments
Ca va venir j’en suis persuadé ! Profite bien de ta semaine de « vacances » avec ta maman ! Je croise les doigts pour que le soleil soit de la partie ! Et euh.. Bon anniversaire 🎊 Si j’ai bien compris ^^ Sinon honte a moi sur les 12 prochaines génération 😂
ah c'est sûr que j'en prends une valise entière . Mais oui l'habitude vient vite. de tte manière si tu as envie d'aller mieux il vaut mieux prendre cette habitude rapidement^^ En tout cas j'espère cette année pouvoir shooter un peu, aller en convention pour le moment c'ets pas d'actualité mais rien que chez moi hein. a suivre :)
J’aime bien quand un de tes posts commencent par le fait que tu as de bonnes nouvelles ! Ça fait super plaisir ! Bon c’est toujours le « chaos » au niveau du nombre incroyable de traitements que tu dois suivre, je sais pas comment tu arrives a gérer tout ça ! Même si tout est toujours une question d’habitude j’imagine.. Mais avoir des résultats enfin encourageant c’est vraiment génial ! Je touche du bois pour que ça continue dans ce sens !! Ça motive encore plus a continuer a « t’aider » même modestement via Patreon ! En espérant de tout coeur qu’un jour cet argent te serve a t’acheter du matériel de cosplay ou de dessin, ou tout ce que tu veux d’autre, et moins de médicaments 🙏🏻 Courage !!
why each time I make a post claiming I'm getting better , do I have to spend an awful night/day following the post?. It's like something is trying to discourage me from feeling victorious. Hell I won't let this stop me. But for now I'd just like it to stop. Meh...
oh oui, tout ce qui m'a été donné sert. Ca va aussi m'aider pour m'acheter ma trotinette avec selle pour me déplacer à mes rendez-vous. ma vie c'est devenu 12h de travail pour aller mieux par jour. Alors croit moi que la chance que j'ai de me faire aider financièrement et mentalement n'est pas pour rien ! ca serait honteux de ne rien faire. ah oui nan c'est pas mauvais normalement les electrolytes, un petit goût acidulé non?
Ça permet de voir aussi que notre investissement sert bien :) et je lis attentivement tes recommandations ! (En plus j’ai droit au beurre d’amande xD) On a pris l’application my fitness pal et je nous ai commandé des montres de suivi pour contrôler tout ça ! Et le truc dans l’eau est pas si mauvais et ça semble efficace
